PRESS RELEASES
FOR IMMEDIATE RELEASE
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Sickle Cell Foundation of Georgia to Host 2025 Inaugural Legislative and Policy Conference at The Gathering Spot, Northyards Location
ATLANTA, GA — October 27, 2025— The Sickle Cell Foundation of Georgia, Inc. (SCFG) will host its inaugural Legislative and Policy Conference on October 31 and November 1, 2025, at The Gathering Spot, 384 Northyards Boulevard NW, Atlanta, Georgia. This two-day event will convene policymakers, healthcare leaders, advocates, and community-based organizations (CBOs) to explore critical legislation and policy developments shaping healthcare access and support for individuals living with chronic health conditions, including Sickle Cell Disease.
The 2025 conference will provide an in-depth look at recent and upcoming policy changes affecting access to healthcare, mental health resources, and essential social services. Attendees will also examine anticipated 2026 policy and funding shifts, assessing their impact on CBOs, families, and equitable care delivery. In addition to policy discussions, the event will feature case studies, research presentations, and advocacy training, all designed to strengthen collaboration between community organizations and corporate partners.
“This conference is about empowering our community with the tools, connections, and knowledge needed to influence meaningful policy change,” said Alexandra Phillips, Business Development Coordinator, Sickle Cell Foundation of Georgia. “By bringing together leaders from across healthcare, advocacy, and policy sectors, we’re building a united front to ensure that access to care, mental health support, and funding remain at the forefront of legislative priorities.”
“For more than 50 years, the Sickle Cell Foundation of Georgia has championed access, equity, and awareness for individuals living with sickle cell disease,” said Tabatha McGee, Chief Executive Officer of SCFG. “This conference continues that mission by helping our advocates and partners understand how upcoming legislative changes can either strengthen or challenge our collective progress in healthcare and beyond.”
Why Attend
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Gain Policy Insights: Stay ahead of evolving legislative changes impacting healthcare and social services.
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Strengthen Advocacy Skills: Learn effective strategies to influence public policy, engage key stakeholders, and amplify your advocacy efforts.
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Expand Your Network: Connect with policymakers, healthcare professionals, and advocates to build meaningful partnerships that drive change.
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Agenda Topics Will Include
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Policy and legislative updates for 2025 and 2026
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Advocacy best practices and strategic communication
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Interactive workshops and real-world case studies
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Panel discussions with legislators and industry experts
About the Sickle Cell Foundation of Georgia, Inc.
Founded in 1971, the Sickle Cell Foundation of Georgia, Inc. (SCFG) is a nonprofit organization dedicated to reducing the incidence of sickle cell disease and improving the quality of life for individuals and families affected by it. SCFG provides comprehensive programs in education, testing, counseling, research, and patient support—serving as a statewide and national leader in sickle cell advocacy and care.
To learn more, visit sicklecellga.org or follow SCFG on social media at @SickleCellGA.
Media Contact:
Maria White Tillman, Director of Marketing and Communications
Sickle Cell Foundation of Georgia
Office 404-755-1641 ext. 202
FOR IMMEDIATE RELEASE
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The Sickle Cell Foundation of Georgia, Inc. Announces Groundbreaking Partnership to Launch Sickle Cell Provider Training and Mental Health Program in Richmond County
Atlanta, GA – October 1, 2025 – The Sickle Cell Foundation of Georgia, Inc. (SCFG) is proud to announce a historic partnership with Representative Karlton Howard (D–Augusta), the Richmond County School System, and the Lamar Medical Center to launch a comprehensive sickle cell provider training and mental health program in Richmond County, Georgia.
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This innovative initiative is designed to improve healthcare outcomes for individuals living with sickle cell disease by providing specialized training for medical providers and addressing the mental health needs of patients, their families, and their caregivers. The program represents a first-of-its-kind collaboration in the region, combining legislative support, community healthcare expertise, and educational engagement.
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Tabatha McGee, CEO of the Sickle Cell Foundation of Georgia, Inc., called the initiative a milestone for the sickle cell community: “This partnership is truly historic. For the first time in Richmond County, providers, schools, and legislators are coming together to ensure that people living with sickle cell disease receive not only quality medical care but also critical mental health support. Together, we are building a model that can change lives and transform communities.”
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Representative Karlton Howard emphasized the importance of the collaboration for his district: "I am deeply committed to this innovative collaboration for Augusta. The personal loss of my grandson to Sickle Cell anemia provides a continuous drive for my advocacy. This partnership marks another significant step toward providing much-needed aid for those affected by this devastating disease and hopefully provides steps to finding a cure.”
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Dr. Malinda Cobb, Superintendent of Schools for the Richmond County School System, agrees, “When our students’ health needs are supported, they are better able to thrive in the classroom and beyond. This partnership strengthens the network of care for students with sickle cell disease and their families, helping them succeed in school and in life.
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The FREE program will roll out on October 10, 2025, at the Richmond County School System Transportation Assembly Room, 4950 Mike Padgett Highway, Augusta, GA 30906. The purpose of the program is to create a replicable model for other counties across Georgia. By bringing together healthcare providers, schools, legislators, and community advocates, the initiative aims to strengthen support for individuals with sickle cell disease and their families, both within and outside the clinic.
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The Lamar Medical Center reports, they, too, celebrate the launch of the program and its impact on local families: Pat Duncan, Nurse Practitioner/Executive Director: “Lamar Medical Center is proud to stand alongside the Sickle Cell Foundation of Georgia, Representative Howard, and the Richmond County School System in launching this important health initiative. By equipping providers with specialized training and expanding mental health services, we are ensuring that sickle cell patients in our community receive the comprehensive care they deserve.”
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This event is approved for AMA PRA Category 1 Credit(s) and is open to the medical community and the general public. Preregistration is highly recommended but is not required.
About Sickle Cell Foundation of Georgia, Inc.
Founded in 1971, the Sickle Cell Foundation of Georgia, Inc. is the nation’s oldest community-based organization dedicated to helping people with sickle cell disease. SCFG provides education, advocacy, testing, and support services to patients and families across the state.
About Rep. Karlton Howard (D), Augusta, District 129
Rep. Howard has been actively involved with numerous religious, civic, and social organizations throughout his career. He has contributed significantly to various initiatives and held key roles in a number of organizations, including the Senior Citizens Council on Aging, the Augusta Aviation Commission, and the Noah Ebenezer Central Baptist Association.
About Richmond County School Systems (RCSS)
Chartered on August 23, 1872, the school system has the oldest public school in the South and the 5th oldest public high school in America, serving more than thirty thousand students annually. Several RCSS schools are on the National Register of Historic Places. The school system’s mission and vision are to empower every learner every day and to prepare every student to thrive, adapt, and lead in an ever-changing world.
About Lamar Medical Center:
The Lamar Medical Center is a Group Practice with one Location. Currently, Lamar Medical Center's seven physicians cover three specialty areas of medicine.
Media Contact:
Maria White Tillman
Director of Marketing & Communications
The Sickle Cell Foundation of Georgia, Inc.
MWhiteTillman@sicklecellg.org
FOR IMMEDIATE RELEASE
Sickle Cell Foundation of Georgia, Inc. Launches College Ambassador Program at Historic Spelman College
Atlanta, GA — [September 25, 2025] — The Sickle Cell Foundation of Georgia, Inc., in conjunction with the Spelman Health Careers Program, proudly announces the launch of its College Ambassador Program at historic Spelman College in Atlanta, Georgia. The program engages student leaders in raising awareness about sickle cell disease among peers, faculty, and the wider campus community.
“Sickle cell disease affects thousands in our communities, yet awareness remains low,” said Cameryn Thorpe, a junior Health Science (Pre-Med) major from Atlanta. “Through this Ambassador Program, we hope to educate our peers and inspire meaningful conversations on campus about prevention, care, and advocacy.”
Faith Osei-Addo, a junior Health Science (Pre-Nursing) major from the Bronx, New York, added, “I want to empower families—especially those new to our healthcare system—to access preventive care, early screenings, and vaccinations. Children are our future, and education is the first step toward better health outcomes.”
Taylor Gamble, a sophomore Health Science and Spanish double major from Dallas, Texas, stated, “This program allows us to combine our academic passions with advocacy. By educating our peers, we’re helping to create a more informed and equitable society where health literacy matters”.
Tabatha McGee, CEO of the Sickle Cell Foundation of Georgia, Inc., said, “Our College Ambassador Program is a testament to the power of student leadership. These Ambassadors are not only raising awareness about sickle cell disease—they are building a generation of advocates who will carry this mission forward.”
About the Ambassadors
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Cameryn Thorpe is dedicated to pursuing a career in hematology and worked with the Sickle Cell Foundation of Georgia on launching a student-led initiative to strengthen advocacy on college campuses.
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Faith Osei-Addo plans to become a Neonatal or Pediatric Nurse Practitioner and focuses on improving family education and access to care for children.
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Taylor Gamble aspires to complete a dual degree in Law and a Master of Public Health to advance preventive medicine, health literacy, and equitable access to care.
About Sickle Cell Disease
Sickle cell disease is a genetic blood disorder in which red blood cells take on a crescent, or “sickle,” shape. These cells can block blood flow and break down quickly, causing pain, fatigue, and organ damage. The disease primarily affects individuals of African, Mediterranean, Middle Eastern, and Indian descent. Treatments such as medication, blood transfusions, and emerging therapies help manage symptoms and improve quality of life.
About the Sickle Cell Foundation of Georgia, Inc.
Founded in 1971, the Sickle Cell Foundation of Georgia, Inc. is a nonprofit organization dedicated to reducing the incidence of sickle cell disease, improving the quality of life for those living with it, and educating the community through awareness and advocacy initiatives.
Media Contact:
Maria White Tillman
Director of Marketing & Communications
Sickle Cell Foundation of Georgia, Inc.
O: 404-755-1641 ext. 202
MWhiteTillman@sicklecellga.org
The Sickle Cell Foundation of Georgia Launches Groundbreaking Talk Show: “Unveiling Sickle Cell: Beyond the Pain”
Atlanta, GA — September 10, 2025— The Sickle Cell Foundation of Georgia proudly announces the launch of its new talk show, Unveiling Sickle Cell: Beyond the Pain, a dynamic and enlightening program dedicated to amplifying the voices and lived experiences of individuals impacted by sickle cell disease.
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Through compelling storytelling, expert insights, and candid conversations, the show breaks through stereotypes to reveal the humanity, courage, and resilience of Sickle Cell Warriors across the globe. Season One has 12 episodes available now on YouTube and the website: unveilingsicklecell.com/episodes
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Hosted by Tabatha McGee, CEO of the Sickle Cell Foundation of Georgia, the show highlights the untold stories of Sickle Cell Warriors—their struggles, victories, and journeys toward wellness.
McGee’s lived experience is the heartbeat of the show. After enduring devastating personal loss, including her son, fiancée, and mother, and nearly losing her own life due to systemic healthcare bias, she transformed her pain into purpose.
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Unveiling Sickle Cell: Beyond the Pain reflects her commitment to creating a platform where sickle cell warriors, caregivers, healthcare professionals, researchers, and advocates can speak in their own voices, dismantle harmful stereotypes, and spotlight both the challenges and the extraordinary strength within the community.
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“I survived a major heart attack after being misdiagnosed, dismissed, and told to just ‘go home and take some Aleve.’” McGee shares. “That experience showed me exactly what our Sickle Cell warriors endure — the racism, the stereotypes, the pain. I knew we needed a safe space where this community could speak candidly and be seen beyond the pain.”
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Viewers can expect first-person stories, expert voices, and community connection with the compassionate authority of its dynamic host.
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From paratrooper to powerhouse, McGee is a transformational leader and advocate for equity, known for turning personal adversity into generational impact. A military veteran, former Xerox leader, and network engineer, McGee brings fierce strategy to everything she touches.
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Foundation Impact Highlights
The Sickle Cell Foundation of Georgia has been a trusted leader for more than 50 years, making a measurable difference in the fight against sickle cell disease:
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Over $5 million secured in state and federal grants to support education, services, and research.
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Georgia’s first and only holistic wellness center for sickle cell clients, launched under McGee’s leadership.
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Strategic partnerships established with premier healthcare institutions, including Grady Hospital and Emory Hospital.
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Thousands of patients and families served annually, providing counseling, testing, and wraparound resources.
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Scholarships, awareness campaigns, and community events that continue to inspire and uplift Sickle Cell Warriors across Georgia and beyond.
The Unveiling Sickle Cell: Beyond the Pain talk show was so impactful, the foundation and host are also releasing a special podcast, Beyond the Pain, which features extended interviews and insight.
Sickle cell disease is more than a diagnosis. It’s a daily lifestyle. This condition disproportionately impacts minority communities, yet remains widely misunderstood. Unveiling Sickle Cell: Beyond the Pain seeks to reclaim the narrative, educate the public, and foster greater empathy and support.
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About the Sickle Cell Foundation of Georgia
Founded in 1971, the Sickle Cell Foundation of Georgia is one of the nation’s leading organizations dedicated to serving individuals with sickle cell disease and their families. Through education, advocacy, research, and community engagement, the Foundation works tirelessly to improve the quality of life for those affected while advancing the mission to one day find a cure.
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Contacts:
Maria WhiteTillman | Marketing & Communications Director | mwhitetillman@sicklecellga.org
Charreah K. Jackson | Publicist | info@shinearmy.com
Sickle Cell Foundation of Georgia
FOR IMMEDIATE RELEASE
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September 1, 2025, Kicks Off National Sickle Cell Awareness Month
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ATLANTA, GA — September 1, 2025 — The Sickle Cell Foundation of Georgia, Inc. (SCFG) is proud to join individuals living with sickle cell disease, their families, healthcare providers, and advocates across the nation in recognizing September as National Sickle Cell Awareness Month.
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It’s a time dedicated to raising awareness, promoting education, and advocating for those impacted by sickle cell disease (SCD). Sickle Cell Awareness Month, officially designated by Congress in 1983, shines a spotlight on a disease that affects nearly 100,000 Americans—primarily of African, Mediterranean, Middle Eastern, and Indian ancestry.
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The observance also underscores the urgent need for expanded research, improved treatment options, and stronger support systems for individuals living with this lifelong genetic blood disorder.
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“September is not just a month of awareness—it’s a call to action,” said Tabatha McGee, CEO of the Sickle Cell Foundation of Georgia, Inc. and the Sickle Cell Sanctuary. “As we continue the fight for better treatments and equitable care, we are reminded that our warriors need our voices, our advocacy, and our commitment every day.”
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Throughout September, the Sickle Cell Foundation of Georgia will host a series of events and outreach campaigns—including our Mind Matters Mental Health sessions on Wednesday, Sept 6th, and Monday, Sept 15th. And the highly anticipated 45th Annual Sickle Cell Road Race/Walk on September 6th in East Point, Georgia.
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These efforts aim to educate the public, provide critical resources, and celebrate the resilience of sickle cell warriors.
This year, SCFG also recognizes recent advancements in gene therapy and potentially other potential treatments as a sign of hope, while reaffirming its mission to serve individuals and families affected by SCD across Georgia and beyond.
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How You Can Help:
· Visit the Sickle Cell Sanctuary and experience any of the services provided, including traditional medical care, holistic medical care, IV Hydration, and infusions.
· Donate to organizations dedicated to sickle cell research and patient support.
· Attend awareness events in your area.
· Share information to help dispel myths and reduce stigma.
For more information on how to get involved or support SCFG during Sickle Cell Awareness Month, visit www.sicklecellga.org.
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About Sickle Cell Sanctuary Wellness Center
This center is a beacon of hope for thousands battling sickle cell disease. The sanctuary not only caters to the body but also nurtures the mind and spirit. The first-of-its-kind center in the U.S., it offers integrated medical care along with traditional medical care in a spa-like setting, a concept that grew out of a vision of its founder, Tabatha McGee, Executive Director of the Sickle Cell Foundation of Georgia, Inc.
Visit gawellness.com for more information.
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About Sickle Cell Foundation of Georgia, Inc.
The Sickle Cell Foundation of Georgia, Inc. (SCFG) is committed to helping the thousands of Georgians who suffer from sickle cell disease. Our funding is used for much-needed services such as health screenings for sickle cell disease and sickle cell trait. SCFG is the only community-based organization providing sickle cell education, sickle cell testing, counseling, a state-of-the-art health and wellness center, and transition services throughout the state of Georgia, which has the fourth-largest sickle cell patient population in the nation. SCD affects approximately 100,000 mostly African Americans in the U.S. and millions worldwide.
Visit sicklecellg.org for more information.
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Contact:
Maria White Tillman, Director of Marketing and Communications
Sickle Cell Foundation of Georgia, Inc.
MWhiteTillman@sicklecellga.org
Office 404-755-1641 ext. 202
FOR IMMEDIATE RELEASE
Sickle Cell Advocates Affirm Support for Drug Development Following the Discontinuation of Pfizer’s THRIVE-131 Trial
August 15, 2025
WASHINGTON, D.C. — Pfizer announced today that its Phase 3 Trial, THRIVE-131, evaluating Inclacumab – an investigational P-selectin inhibitor – for the reduction of vaso-occlusive crises (VOCs) in people with sickle cell disease (SCD) did not meet its primary endpoint and will be discontinued.
While this news is disappointing, it is not unusual for drug trials to end before reaching the market. In fact, more clinical trials are halted than completed and such decisions are part of the rigorous process designed to ensure that any treatment made available is shown to be safe and effective before reaching the public.
Clinical trials and innovation remain vital to improving the health and quality of life for people living with SCD. We remain committed to supporting clinical research, ensuring that the perspectives and needs of the SCD community are reflected in every step of the process.
We are deeply grateful to the participants of THRIVE-131, whose involvement strengthens the future of sickle cell treatments. We are encouraged by the continued momentum in drug development for SCD and will keep advocating for studies that place the needs of people with SCD at the center.
— Sick Cells, Sickle Cell Medical Advocacy Inc., Sickle Cell Foundation of Georgia, Inc., Sickle Cell Disease Association of America Inc. Crescent Foundation, SC RED, Sickle Cell 101, Sickle Cell Community Consortium
July 21, 2025
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Camp New Light is Underway, Ushering in a New Era for the Long-Running Summer Tradition
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The beloved summer camp, running through Sunday, July 26th, has officially begun its first season under its new name: Camp New Light. While the name may be new, the camp continues its decades-long legacy of providing fun, learning, and growth for children and teens with sickle cell disease — now with a fresh perspective and exciting new leadership.
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Along with the name change comes a new face at the helm. Kadeem Harrison, who previously served as Assistant Camp Director, steps into the role of Camp Director this year. Harrison brings a deep understanding of the camp’s mission and a forward-thinking vision to lead it into its next chapter.
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“This is a moment of renewal,” said Harrison. “The name Camp New Light reflects both the bright future we envision for our campers and the guiding light this camp has always been in their lives. I’m honored to lead this next chapter.”
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Camp New Light is the oldest summer camp for children living with sickle cell in Georgia.
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Founded in 1977, Camp New Light provides an opportunity, each summer, for children to be "kids", and not "the kids with sickle cell”. Campers participate in typical camp activities, such as horseback riding, canoeing, archery, rock wall climbing, zip-lining, and more.​
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The camp is structured to accommodate the challenges of living with sickle cell disease with a 24-hour infirmary staffed by highly qualified medical professionals. Some of the volunteer counselors are young adults living with sickle cell disease, who serve as role models and mentors for campers.
April 2, 2025
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The 45th Annual Sickle Cell Foundation of Georgia’s 5K Road Race/Walk - Registration Now Open!
East Point, Georgia — The Sickle Cell Foundation of Georgia (SCFG) is excited to announce that registration is now open for the 45th Annual SCFG 5K Road Race/Walk! Participants are invited to lace up their sneakers and join us for a meaningful run or walk through the historic streets of downtown East Point, Georgia, on Saturday, September 6, 2025. All participants will receive a finisher’s medal and a race event t-shirt.
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The race will kick off in front of East Point City Hall at 9:00 AM as runners and walkers trek through scenic East Point neighborhoods and bustling downtown East Point before crossing the finish line back at City Hall. This beloved community event attracts runners, walkers, and supporters from across the region, all united by a shared commitment to support the sickle cell community.
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Proceeds from this year’s race will benefit Camp New Light, a transformative summer camp designed for children living with sickle cell disease. The camp provides a supportive environment where campers can engage in recreational activities, form lasting friendships, and develop the confidence to advocate for themselves.
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Over the years, countless participants have come together to make a difference. This year, we’re aiming to make an even greater impact.
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Register Now! Don’t miss your chance to participate in the 45th Annual SCFG 5K Road Race. Sign up today and help us bring light and hope to children affected by sickle cell disease. Join us and lock in our Early Bird Special from now until June 1st. The Early Bird fee for ages 18-99 years old is $35.00, for ages 7-17 years old it’s $25.00, and for ages six and under it's free!
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The top three overall fastest winners for both men and women will receive an award! Master awards will be presented to both men and women 40 and over. To round out the winners, the top three boys and girls, age group 17 and under, will receive an award.
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For registration details and more information, visit sickcellrace.com.
About Sickle Cell Foundation of Georgia, Inc.
The Sickle Cell Foundation of Georgia, Inc. (SCFG) is committed to helping the thousands of Georgians who suffer from sickle cell disease. Our funding is used for much-needed services such as health screenings for sickle cell disease and sickle cell trait. SCFG is the only community-based organization providing sickle cell education, sickle cell testing, counseling, a state-of-the-art health and wellness center, and transition services throughout the state of Georgia, which has the fourth-largest sickle cell patient population in the nation. SCD affects approximately 100,000 mostly African Americans in the U.S. and millions worldwide. Visit sicklecellga.org for more information.
About Camp New Light
Camp New Light is a summer camp dedicated to children aged 7-17 living with sickle cell disease. With a mission to provide a safe, fun, and supportive camp experience, Camp New Light offers programming that fosters resilience, community, and joy. The camp is held at Camp Fortson 4H Campsite in Hampton, Georgia, July 20-26, 2025. Visit sicklecellcamp.com for more information.
Contact:
Maria White Tillman, Director of Marketing and Communications
Sickle Cell Foundation of Georgia, Inc.
Office 404-755-1641 ext. 202
Email: MWhiteTillman@sicklecellga.org
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FOR IMMEDIATE RELEASE
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Sickle Cell Sanctuary Wellness Center Celebrates First Anniversary
A Year of Holistic Healing and Support for the Sickle Cell Community
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ATLANTA, GA – [March 27, 2025] – The Sickle Cell Sanctuary Wellness Center, located in the heart of the historic Cascade District in Southwest Atlanta, is proud to celebrate its first anniversary as a haven of care, empowerment, and wellness for individuals living with sickle cell disease.
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The Sickle Cell Sanctuary, the first and only one of its kind in the nation, is an integrative and functional wellness center specializing in holistic care for sickle cell disease and other health disparities.
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“At the Sickle Cell Sanctuary, we believe in treating the whole person, not just the disease,” said Tabatha McGee, Executive Director, Sickle Cell Foundation of Georgia, Inc. “This first year has been a testament to the resilience of the sickle cell community and the power of integrative care.”
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Since its opening, the Sanctuary has provided more than 450 service visits to nearly 300 people, offering a holistic approach to managing sickle cell disease through medical care, mental health services, and wellness therapies.
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Treatment for sickle cell warriors without insurance is provided at no cost. And everyone is welcome to enjoy the services offered at the Sanctuary whether or not they have sickle cell disease.
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Integrated Healthcare Services Provided at the Sanctuary:
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Hematology Care
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Orthomolecular and Nutritional Counseling
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Mental Health Support
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IV/Hydration Therapy
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Massage Therapy
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Yoga & Pilates
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Facials & Self-Care
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As the Sanctuary enters its second year, it remains committed to expanding services, increasing community outreach, and continuing to be a place of healing and support.
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About Sickle Cell Sanctuary Wellness Center
This center is a beacon of hope for thousands battling sickle cell disease. The sanctuary not only caters to the body but also nurtures the mind and spirit. The first-of-its-kind center in the U.S., it offers integrated medical care along with traditional medical care in a spa-like setting, a concept that grew out of a vision of its founder, Tabatha McGee, Executive Director of the Sickle Cell Foundation of Georgia, Inc. Visit gawellness.com for more information.
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About Sickle Cell Foundation of Georgia, Inc.
The Sickle Cell Foundation of Georgia, Inc. (SCFG) is committed to helping the thousands of Georgians who suffer from sickle cell disease. Our funding is used for much-needed services such as health screenings for sickle cell disease and sickle cell trait. SCFG is the only community-based organization providing sickle cell education, sickle cell testing, counseling, a state-of-the-art health and wellness center, and transition services throughout the state of Georgia, which has the fourth-largest sickle cell patient population in the nation. SCD affects approximately 100,000 mostly African Americans in the U.S. and millions worldwide. Visit sicklecellga.org for more information.
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Contact:
Maria White Tillman, Director of Marketing and Communications
Sickle Cell Foundation of Georgia, Inc.
Office 404-755-1641 ext. 202
FOR IMMEDIATE RELEASE
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Beloved Georgia Sickle Cell Summer Camp has a New Name, a New Director, and a Fresh Vision for Summer 2025
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ATLANTA, GA – [March 25, 2025] – The beloved Georgia Sickle Cell summer camp is now known as Camp New Light – a symbol of hope, resilience, and new opportunities for young warriors. The new name includes a renewed commitment to empowering children living with sickle cell disease.
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Camp New Light will be held at the Fortson 4H Campsite in Hampton, Georgia, providing a week-long overnight safe environment for children ages 7 to 17 who are living with sickle cell disease. This transformative summer camp experience is designed to offer adventure, education, and a strong sense of community.
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Leading this new chapter is Kadeem Harrison, the newly appointed Camp Director. Harrison has a wealth of experience in youth leadership and camp programming, ensuring that each camper has a rewarding and memorable experience. His passion for mentorship and advocacy makes him an inspiring leader to the Camp New Light family.
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“We are thrilled to introduce Camp New Light as a place where children can connect, learn, and most importantly, just be kids,” said Harrison. “Our goal is to create an environment where they can embrace their strengths, build lifelong friendships, and enjoy the magic of summer camp in a way that meets their unique needs.”
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Camp New Light is the oldest summer camp for children living with sickle cell in Georgia.
It is a medically supervised camp and the only camp for children with sickle cell, certified by the American Camp Association as a camp of quality in the state. Founded in 1977, Camp New Light provides an opportunity each summer for children to be "kids" and not "the kids with sickle cell” in a supportive environment where everyone is familiar with sickle cell’s impact on everyday life. Campers participate in typical camp activities, such as horseback riding, canoeing, archery, rock wall climbing, zip-lining, and more.
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As a transition-focused camp, Camp New Light helps campers understand their disease and participate in activities to prepare them to transition from pediatric to adult care. Campers can relax and learn healthy habits free from worry about explaining their pain, their exhaustion, or why they take medication.
The camp is structured to accommodate the challenges of living with sickle cell disease with a 24-hour infirmary staffed by highly qualified medical professionals. Some of our volunteer counselors are young adults living with sickle cell disease who serve as role models and mentors for campers.
About Camp New Light
Camp New Light is a summer camp dedicated to children aged 7-17 living with sickle cell disease. With a mission to provide a safe, fun, and supportive camp experience, Camp New Light offers programming that fosters resilience, community, and joy. The camp is held at Camp Fortson 4H Campsite in Hampton, Georgia, July 20-26, 2025. Visit https://www.sicklecellcamp.com/ for more information.
About Sickle Cell Foundation of Georgia, Inc.
The Sickle Cell Foundation of Georgia, Inc. (SCFG) is committed to helping the thousands of Georgians who suffer from sickle cell disease. Our funding is used for much-needed services such as health screenings for sickle cell disease and sickle cell trait. SCFG is the only community-based organization providing sickle cell education, sickle cell testing, counseling, a state-of-the-art health and wellness center, and transition services throughout the state of Georgia, which has the fourth-largest sickle cell patient population in the nation. SCD affects approximately 100,000 mostly African Americans in the U.S. and millions worldwide.
Visit https://www.sicklecellga.org/ for more information.
Contact:
Maria White Tillman, Director of Marketing and Communications
Sickle Cell Foundation of Georgia, Inc.
Office 404-755-1641 ext. 202
Press Release
February 24, 2025
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The Sickle Cell Foundation of Georgia, Inc. Wins Prestigious Non-Profit of the Year Award
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The Sickle Cell Foundation of Georgia, Inc. (SCFG) is proud to announce it has been named the Non-Profit of the Year at the Women of Wealth Awards Ceremony, this past weekend. The award, presented to organizations that demonstrate excellence in their impact and commitment to the community, recognized SCFG's unwavering dedication to the sickle cell community.
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Since its founding, SCFG has worked tirelessly to make a profound difference in the lives of countless individuals in the sickle cell community . This recognition highlights the foundation's continued success in driving positive change and fostering a sense of hope and support within the community.
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“We are honored and humbled to receive this incredible recognition,” said Executive Director, Tabatha McGee. “This award is a testament to the hard work and passion of our team, volunteers, partners, and supporters. Together, we are making a real difference, and we remain committed to continuing our mission for years to come.”
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For more information about SCFG and its work, please visit sicklecellga.org and gawellness.com.
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For media inquiries, please contact:
Michael Thomas, Communications Specialist
mthomas@sicklecellga.org , 404-755-1641 x237
PRESS RELEASE
February 13, 2025
Sickle Cell Day at the Capitol: A Powerful Advocacy Event for Sickle Cell Disease Awareness
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The Sickle Cell Foundation of Georgia is hosting the annual Sickle Cell Day at the Capitol, in partnership with local and national advocates, on February 12, 2025.
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This event connects people living with sickle cell disease, their families, providers and community leaders as they advocate for critical awareness and better overall resources for the sickle cell community.
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Held at the Georgia State Capitol, this event brings together people impacted by sickle cell disease with Georgia lawmakers to raise their voices, share personal stories, and discuss the challenges they face. The Sickle Cell Foundation of Georgia, alongside its partners, aims to foster understanding, provide support, and inspire change by connecting those who need help with the decision-makers who have the power to make a difference.
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"Sickle Cell Day at the Capitol is an important opportunity to amplify the voices of individuals and families affected by sickle cell disease. By bringing together our community and lawmakers, we can make real strides in securing better care and support for people living with this challenging condition," said Tabatha McGee, Executive Director of the Sickle Cell Foundation of Georgia.
The Sickle Cell Foundation of Georgia invites all those impacted by sickle cell disease to attend and participate in this important day of advocacy.
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For more information on Sickle Cell Day at the Capitol or to get involved, please visit sicklecellga.org/events .
About the Sickle Cell Foundation of Georgia
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The Sickle Cell Foundation of Georgia is a non-profit organization dedicated to improving the quality of life for individuals living with sickle cell disease. Through advocacy, education, research, and support, the foundation works to address the challenges of those affected by sickle cell disease and to foster greater awareness of this lifelong condition.
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For media inquiries, please contact:
Michael Thomas, Communications Specialist
mthomas@sicklecellga.org , 404-755-1641 x237
PRESS STATEMENT
January 1, 2025
The Sickle Cell Foundation of Georgia, Inc. Announces Sponsorship Agreement With Norvo Nordisk
The Sickle Cell Foundation of Georgia, Inc. (SCFG) is thrilled to announce our new sponsorship agreement with Novo Nordisk.
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For more than a century, Novo Nordisk has been driving change to defeat serious chronic diseases, by pioneering scientific breakthroughs, expanding access to medicines, and working to prevent, and cure the diseases they treat.
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A distinguished organization that offers exceptional service and commitment to communities worldwide, Novo Nordisk has made a profound impact, including significant contributions to the sickle cell community. The company’s unwavering support has advanced research, and empowered individuals and families affected by sickle cell disease.
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Novo Nordisk is committed to changing the outcomes for people living with sickle cell disease (SCD) and providing innovative treatment options. Together, the Sickle Cell Foundation of Georgia and Novo Nordisk are working to forge a brighter future for those we serve.
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The sponsorship was highlighted at the 3rd Annual Sickle Cell Foundation Black-Tie Gala and will continue to be featured on the SCFG website.
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To learn more about Novo Nordisk and its dedication to improving patient outcomes, please visit novonordisk.com.
PRESS STATEMENT
December 9, 2024
The Sickle Cell Foundation of Georgia, Inc. Hosts Its 3rd Annual Black-Tie Gala
This past Saturday, The Sickle Cell Foundation of Georgia, Inc. (SCFG) brought glamour, excitement, and enchantment to guests at its annual gala event. The sold-out night to remember was filled with singing, giveaways, awards, great food, dancing, and all-around fun. Held at The Westin Atlanta Airport Hotel, the evening brought together warriors and advocates to end this year on a high note.
Guests were treated to captivating live performances by AR The Prophet, Phoenix Sohl, and Mac Royals. The night also featured exciting giveaways. Lucky winners walked away with prizes from The High Museum, Atlanta Symphony Orchestra, Atlanta Botanical Gardens, Alliance Theatre, Ruth’s Chris, and more.
Awards were presented to outstanding individuals and organizations for their invaluable contributions to the sickle cell community over the past year.
“We are thrilled to host such an incredible event that not only entertains, but also uplifts our warriors and recognizes the contributions of the sickle cell community,” said SCFG’s Executive Director, Tabatha McGee.
SCFG extends a heartfelt thank you to all who attended the gala, the performers, sponsors, and volunteers who made this event such an overwhelming success.
For more information about upcoming events, please visit sicklecellga.org or contact Michael Thomas, Communications Specialist at mthomas@sicklecellga.org or 404.755.1641.
PRESS STATEMENT
October 24, 2024
McKinsey & Company Volunteers Beautify the Community with Flower Planting Initiative
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On October 18th, a group of dedicated employees from McKinsey & Company gathered at The Sickle Cell Foundation of Georgia (SCFG) to get a head start on spring, by planting bulbs around the Foundation.
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The initiative is part of McKinsey & Company’s ongoing commitment to social responsibility and environmental sustainability. The employees planted a variety of bulbs that will bloom into beautiful flowers and add vibrancy to SCFG and the surrounding neighborhood.
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The afternoon started with a brief lesson about sickle cell disease and SCFG’s role in assisting people living with the condition. Then, McKinsey & Company volunteers, along with SCFG employees, got busy planting.
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Several of the volunteers had personal and professional experience with sickle cell disease.
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Michael Allen, a McKinsey & Company employee, shared the story of his mother, who lived with sickle cell disease. Several others spoke about a colleague’s sister, who recently lost her battle with the disease.
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This successful event provided McKinsey & Company employees with an opportunity to connect with residents and reinforce the company’s commitment to fostering community well-being.
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McKinsey & Company is a global consulting firm, designed to operate as a single global partnership, united by a strong set of values. The company is equally committed to attracting and developing a talented and diverse group of colleagues, and helping clients create meaningful and lasting change.
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For more information, visit mckinsey.com
PRESS STATEMENT
September 28, 2024
By: Tabatha McGee, Executive Director
Sickle Cell Foundation of Georgia, Inc.
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I am very saddened that our Sickle Cell Warriors must discontinue taking Oxybrata.
In a statement, Pfizer said its decision to halt distribution was “based on the totality of clinical data that now indicates the overall benefit of Oxybrata no longer outweighs the risk in the approved sickle cell patient population”.
However, many Warriors have told me about their success using It. After I attended several meetings with Pfizer, I was informed that the risks outweighed the benefits. 
Pfizer has assured the sickle cell community there is a pipeline of other therapies in development. 
While we are extremely concerned, I ask all of us to stay hopeful and patient. Pfizer is promising to address the sickle cell community in a town hall meeting. 
I am personally troubled and impacted by this decision, as I have close friends, employees, and Warriors taking Oxybrata with success. My ultimate concern is finding another therapy that they feel comfortable taking with the advice of their provider as we await Pfizer’s next steps.  
Let’s all stay prayerful as we navigate through this shocking revelation.
Thank you.
Tabatha McGee, Executive Director
Sickle Cell Foundation of Georgia, Inc.
2391 Benjamin E. Mays Drive, SW
Atlanta, Georgia 30311
Sickle Cell Foundation of Georgia, Inc. Announces the44th Sickle Cell 5K Road Race/WalkAnnual Fundraiser Culminates with a FREE Outdoor Concert Featuring Hypnotic Sohl and a Candlelight Vigil in downtown East Point. Race/Walk starts at 6 PM
ATLANTA, GA [August 8, 2024] —. Lace up your sneakers and join the Sickle Cell Foundation of Georgia, Inc. (SCFG) for the 44th Sickle Cell Road Race/Walk, an annual charity fundraiser that’s not just a race, it's a celebration of community and support for those affected by sickle cell disease (SCD). Registration for the 5K Race/Walk is now open at www.sicklecellrace.com
Kicking off at 6 PM at East Point City Hall, 2757 East Point Street, on Saturday, September 14th, the event promises an evening filled with fun, fitness, and fantastic music! Let’s come together with family and friends to make a difference and raise awareness for a cause that touches millions of lives worldwide and more than 14,000 here in Georgia alone.
“Our annual event has certainly become a family affair for so many supporters of the sickle cell community,” said SCFG Executive Director Tabatha McGee. “With the support of our amazing community, we are coming together for a day filled with excitement, music, and remembrance. Join us for the race, the after-race concert, and the vigil as we unite to raise awareness for sickle cell disease. Together, we can make a difference and show our solidarity with those affected by this condition.”
The after-race concert will feature soulful music and good times by Atlanta recording artist Hypnotic Sohl on the East Point City Hall Front Lawn.
Hypnotic Sohl will bring a fully immersive concert experience with electrifying performances uniting Recording Artist Phoenix Sohl with Producer/Saxophonist Hyptno Music. This immersive concert will blend diverse musical genres such as Jazz, R&B Soul, Latin, Pop, and World Music, where every note, every rhythm, speaks directly to the soul. Lawn chairs are welcome.
Following the concert, SCFG will honor family members and friends we have lost to the disease during our annual candlelight vigil.
The Sickle Cell 5K Road Race/Walk is a popular, charity race recognized as one of Georgia’s longest, consecutively running road races. Since its inception, it has supported the Sickle Cell Foundation of Georgia’s Camp New Hope, a weeklong medically supervised camp for kids and teens living with sickle cell disease. The race/walk is an official AJC Peachtree Road Race Qualifying Event (Race Certification Code GA24033WC).
SCFG is a statewide 501(c)(3) nonprofit advocating for and serving children and adults with sickle cell and other abnormal hemoglobin. SCFG offers affordable, mobile, and in-person adult medical services, sickle cell testing, specialized care coordination, educational opportunities, and food assistance.
McGee said African Americans and other people of color are disproportionately impacted by SCD, a hereditary blood disorder that causes debilitating pain episodes and severe organ damage that can lead to early death. While in recent months there have been medical breakthroughs, there continue to be no universal, affordable cure options for those living with sickle cell.
WHAT: Sickle Cell 5K Road Race/Walk/Concert/Vigil
WHEN: Saturday, September 14, 2024 @ 6 PM
WHERE: East Point City Hall, 2757 East Point Street
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Georgia’s First Sickle Cell Sanctuary Wellness Center Hires Renowned Hematologist
August 29, 2024
ATLANTA, GEORGIA - The Sickle Cell Sanctuary Wellness Center is thrilled to announce the appointment of Dr. Anthony C. Onyegbula, D.O. as their new hematologist. Dr. Onyegbula will bring extensive expertise and a compassionate approach to the Sanctuary wellness center, reinforcing its commitment to providing exceptional care for individuals with sickle cell disease.
A highly skilled physician with an impressive background in hematology and a dedicated focus on sickle cell disease, Dr. Onyegbula is completely involved with patient care. He has collaborated closely with experts in surgery, cardiology, neurology, endocrinology, and orthopedics to provide comprehensive evaluation and treatment services for all patients while promoting optimal wellness.
With over 20 years of experience in the field, Dr. Onyegbula has demonstrated a profound understanding of the complexities of sickle cell disease.
“We are excited to welcome Dr. Onyegbula to our team”, said Yolanda Banks, Director of the Sickle Cell Sanctuary Wellness Center. “Dr. Onyegbula’s expertise and patient-centered approach align perfectly with our mission to enhance the quality of life for those affected by sickle cell disease. We are confident that Dr. Onyegbula will be a tremendous asset in our ongoing efforts to provide comprehensive and innovative care.”
The Sickle Cell Sanctuary Wellness Center is Georgia’s only holistic wellness center for people living with sickle cell disease. It offers various services, including massage therapy, acupuncture, biometrics counseling, herbal treatments, hematology, oncology, IV hydration and infusions, psychotherapy and treatment, reflexology, traditional medical care, and yoga on the lawn.
For more information about the Sickle Cell Sanctuary Wellness Center, call 404-755.1641 or visit gawellness.com
Media Contact:
Maria White Tillman, Director, Marketing and Communications
O: 404.755.1641 ext. 202
Tabatha McGee, Executive Director of the Sickle Cell Foundation of Georgia, Inc. (center) cuts the ribbon at the grand opening of the Sickle Cell Sanctuary, a first-of-its-kind wellness center for people living with sickle cell disease.
ATLANTA – More than 200 esteemed guests attended the opening Tuesday, June 18th of the Sickle Cell Sanctuary, a wellness center in Atlanta that gives hope and a chance for a better life to thousands of people in the U.S. living with the debilitating and painful hereditary blood disease.
Nestled at 2391 Benjamin E. Mays Drive, this center is not just a building; it's a beacon of hope for thousands battling sickle cell disease. The event was nothing short of a celebration, showcasing a sanctuary that not only caters to the body but also nurtures the mind and spirit.The first-of-its-kind center in the U.S., offers integrated medical care along with traditional medical care in a spa-like setting, a concept that grew out of a vision of its founder Tabatha McGee, Executive Director of the Sickle Cell Foundation of Georgia, Inc.
“Here, at the Sanctuary we provide an oasis of support, compassion, and expertise to ensure that every individual receives the specialized attention they deserve,” McGee told guests. “Our team of health and wellness professionals is committed to making a positive impact on the lives of those affected by sickle cell disease, by offering a range of comprehensive services tailored to meet their unique needs. We will take you on a journey towards better health and well-being. It’s a journey where you are not just a patient, you are family.”
Following the grand opening, guests were taken on a special tour of the wellness center.
“It’s beautiful. It’s very much needed in the community,” said Erica Gamble, the mother of a 32- year-old son who is living with sickle cell disease. “I certainly understand what this could do to change someone's life.”
“It’s peaceful. It is definitely a place where I will come for the services provided, said Jauquil Manson, who is living with sickle cell disease.
Growing up, she said, life was hard, especially trying to obtain medical attention.
“Very hard. Very traumatizing. Especially when you are in and out of the hospital, and when you are in pain, some doctors don’t believe you. I always hoped there was a place like this where there’s no judgment.”
With a mission to empower patients to manage their condition effectively, experience fewer pain crises, and live fulfilling lives, the Sanctuary will offer a range of services, including:
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Psychotherapy and Treatment: Providing counseling to help a person identify and change troubling emotions, thoughts, and behaviors.
Nutritional counseling: Providing tailored dietary plans to manage inflammation and support overall health.
Stress management techniques: Teaching mindfulness meditation, yoga, and other practices to reduce stress and improve coping mechanisms.
Physical therapy: Personalized exercise programs to increase strength, flexibility, and manage pain.
Massage therapy: To improve relaxation, circulation, and pain.
Support groups: Providing a safe space for patients to connect, share experiences, and gain emotional support.
Educational workshops: To teach patients about SCD, pain management techniques, and healthy lifestyle choices.
The Sickle Cell Sanctuary also offers acupuncture, biometrics counseling, herbal treatments, hematology and oncology services, IV hydration and infusions, psychotherapy and treatment, reflexology, traditional medical care, and yoga on the lawn.
For more information on the Sickle Cell Sanctuary, call 404-755.1641 or to schedule an appointment visit www.gawellness.com
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May 30, 2024
New Center Opens Offering Unique Approach to Treating Thousands Living with Sickle Cell Disease Tuesday, June 19th is World Sickle Cell Awareness Day
ATLANTA – As the world prepares to observe World Sickle Cell Awareness Day on June 19th, a new center in the heart of Southwest Atlanta, Ga., promises to give hope and a chance for a better life to thousands of individuals in the U.S. living with the debilitating and painful hereditary blood disease.
Located at 2391 Benjamin E. Mays Drive, where the nearest emergency medical services and a center for traditional sickle cell treatment lie at the city's only public hospital, the Sickle Cell Sanctuary promises to be an oasis that caters to the body, mind, and spirit. It opens to all seeking care on Tuesday, June 18th at 10:00 AM EST.
The center will offer integrated medical care along with traditional medical care, a concept that grew out of a vision of its founder Tabatha McGee, Executive Director of the Sickle Cell Foundation of Georgia, Inc."This is a dream come true," said SCFG Executive Director Tabatha McGee, who developed the concept from a vision she had years ago. "We have always wanted to do more for our clients. Too often, those with sickle cell disease and in the midst of a pain crisis have to wait hours to receive something as basic as IV hydration and infusion. We will be offering those services and much more."
Embracing a spa-like setting, the Sanctuary promises a rejuvenating experience for SCD patients, ensuring they receive the highest care and support. It's not just a sanctuary; it's a game-changer in the SCD community.
Today millions of individuals across the world suffer from sickle cell disease, according to the World Health Organization, including more than 100,000 individuals in the United States. However, facilities offering integrated medical care with traditional medicine aren’t available.
The Sanctuary began, Tabatha said, as a reoccurring dream following a medical setback. After suffering a debilitating heart attack and stroke, she soon tried an integrated approach to her care. Tabatha's journey led her to realize her dream of helping those in the sickle cell community in a new way: a holistic wellness center specifically for sickle cell patients.
With a mission to empower patients to manage their condition effectively, experience fewer pain crises, and live fulfilling lives, the Sanctuary will offer a range of services, including:
Nutritional counseling: Providing tailored dietary plans to manage inflammation and support overall health.
Stress management techniques: Teaching mindfulness meditation, yoga, and other practices to reduce stress and improve coping mechanisms.
Physical therapy: Personalized exercise programs to increase strength, flexibility, and manage pain.Massage therapy: To improve relaxation, circulation, and pain.
Support groups: Providing a safe space for patients to connect, share experiences, and gain emotional support.
Educational workshops: To teach patients about SCD, pain management techniques, and healthy lifestyle choices.
The Sickle Cell Sanctuary will also offer acupuncture, biometrics counseling, herbal treatments, hematology and oncology services, IV hydration and infusions, psychotherapy and treatment, reflexology, traditional medical care, and yoga on the lawn.
Dr. Shalomim Halahawi, the Sanctuary's Medical Director, says the center will improve the health outcomes of sickle cell patients by taking a holistic approach to care."The holistic medicine approach should be considered primary care, especially concerning preventative care. Holistic care has been around for thousands of years. Compared to modern Western medicine, modern medicine is the child. Holistic medicine is the mother and the father."
For more information on the Grand Opening of the Sickle Cell Sanctuary, call 404-755.1641 or visit www.gawellness.com
February 5, 2024
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Sickle Cell Foundation of Georgia, Inc. Hosts Sickle Cell Day at the Capitol
ATLANTA – The Sickle Cell Foundation of Georgia, Inc. (SCFG) will host Sickle Cell Day at the Capitol from 9 a.m. until 1 p.m. Wednesday, February 7, 2024.
The day will provide an opportunity for state legislators to hear concerns and challenges from those affected by sickle cell disease (SCD) throughout the state of Georgia. SCFG has been a longtime advocate for Medicaid expansion in Georgia, considering Medicaid is a key source of health insurance coverage for individuals with sickle cell disease.
SCFG Executive Director Tabatha McGee also highlighted the critical role that advocacy plays in the organization's mission.
“It was through our advocacy efforts on the state level that Georgia became a leader in implementing comprehensive testing for sickle cell anemia and other abnormal hemoglobins in newborns,” McGee said. “Thanks to these efforts, many young lives have been saved since the 1970s.”
However, McGee emphasized that more work needs to be done to continue advancing medical treatments for sickle cell disease including gene therapy treatments.“Even with recently introduced gene therapy treatments, that some are touting as a possible cure, Medicaid doesn’t cover it,” McGee said.
Register for Sickle Cell Day at the Capitol at www.sicklecellga.org
December 19, 2023
Sickle Cell Foundation of Georgia Executive Director Tabatha McGee Blasts NBC’s Saturday Night Live Skit as Blatantly Insensitive
STATEMENT:
Sickle cell disease is a serious and debilitating condition that affects millions of people around the world. It is not a joke, and it is not something to be taken lightly. That's why we were appalled when we saw the recent skit on NBC’s Saturday Night Live (Dec. 16) that made fun of those living with this condition. It was not only distasteful but also blatantly insensitive, and it only served to perpetuate harmful stereotypes and misconceptions about sickle cell disease. Sickle cell disease is not something that affects people of African descent only. And people with sickle cell disease understand the recent medical breakthroughs just as anyone else does. After all, they are the ones living with the pain that sickle cell causes. Let us never trivialize a landmark moment in medicine that could save lives in the years to come.
We cannot stand by and allow this kind of ignorance and insensitivity to go unchecked. That's why we are calling on Kenan Thompson and the producers of Saturday Night Live to apologize to the sickle cell community for their hurtful and offensive skit. We urge them to take this opportunity to become advocates for proper understanding and awareness of this condition.
At the Sickle Cell Foundation of Georgia, Inc., we are committed to supporting those affected by this disease and advocating for better treatment and care. We cannot do it alone, and we need your help. Join us in the fight against sickle cell disease and stand with us in demanding respect and dignity for all those living with this condition. Together, we can make a difference and bring about positive change.
Tabatha McGee
Executive Director
Sickle Cell Foundation of Georgia
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Media Contact:
Michael Thomas: 404-755-1641 ext. 237 or at mthomas@sicklecellga.org
December 19, 2023
President Joe Biden Honors Sickle Cell Foundation of Georgia Executive Director Tabatha McGee
with Lifetime Achievement Award
ATLANTA – Sickle Cell Foundation of Georgia Executive Director Tabatha McGee has been awarded the prestigious Presidential Lifetime Achievement Award in recognition of her 6,000 hours of volunteer service to the nation.
Signed by President Joe Biden, the Presidential Lifetime Achievement Award honors those in our nation who exhibit outstanding character, and a strong work ethic, and demonstrate an immense dedication to their communities through service. The Presidential Lifetime Achievement Award is a high honor.
McGee was honored for her service as a U.S. Army Veteran, for her Community Service, Leadership and Mentorship, and Non-Profit Management.
“I am deeply honored and it’s something that I never expected,” McGee said. “To me, community work is not just a job, it's a way of life. It's about coming together to make a positive impact on the world around us, to lift each other up, and to ensure that everyone has access to the resources such as proper healthcare and opportunities they need to thrive. Whether it's volunteering at the Sickle Cell Foundation on day one or advocating for the expansion of Medicaid under the Gold Dome, I am always looking for ways to make a difference in someone else’s life.”
A letter accompanying the Award reads:
The American Story depends not on any one of us, not on some of us, but on all of us. I congratulate you on taking it upon yourself to contribute to the public good, and I’m proud to present you with the President’s Lifetime Achievement award in recognition of your 6,000 hours of service to this great Nation.
Throughout our country’s history, the American story has been strengthened by those who combine an optimism about what can be with the resilience to turn that vision into reality. I know I’m not alone in
recognizing that those who are willing to step up and volunteer in service of the community and country are essential to the ongoing work of forming a more perfect union.
By sharing your time and passion, you are helping discover and deliver solutions to the challenges we face – solutions that we need now more than ever. We are living in a moment that calls for hope and light and love. Hope for our futures, light to see our way forward, and love for one another. Through your service, you are providing all three.
On behalf of the American people, I extend my heartfelt appreciation to you for your volunteer leadership, and I encourage you to continue to answer the call to serve. The country is counting on you.
J R Biden
As SCFG Executive Director, McGee has made significant strides towards the success of the organization, including the opening of a new wellness center in the first quarter of 2023, expanding their laboratory to provide more extensive testing options for individuals living with sickle cell, and securing groundbreaking grants from the State of Georgia and the federal government of $2.2 million. Additionally, her accomplishments include a partnership with Grady Hospital, which allows them to identify and work with children diagnosed with sickle cell, a week-long camp sponsoring over 150 kids suffering from the disease, and tirelessly advocating for legislation to advance treatment and support of those suffering. She has grown her staff by 50% over three years, broadening support and care across Georgia.
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FDA Approves Two Breakthrough Gene Therapies to Treat
Patients with Sickle Cell Disease
For Immediate Release: December 08, 2023
The Sickle Cell Foundation of Georgia responded to today’s approval of two new gene therapies by the U.S. Food and Drug Administration to treat patients with sickle cell disease.
Sickle cell disease is a debilitating disorder that affects millions of people globally, causing excruciating pain, stroke, deadly organ damage, and other complications due to the malformed cells.
The FDA approved two milestone treatments, Casgevy and Lyfgenia, representing the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older. Additionally, one of these therapies, Casgevy, is the first FDA-approved treatment to utilize a type of novel genome editing technology, signaling an innovative advancement in the field of gene therapy, according to Friday’s announcement. Casgevy, a cell-based gene therapy, is approved for the treatment of sickle cell disease in patients 12 years of age and older with recurrent vaso-occlusive crises. Casgevy is the first FDA-approved therapy utilizing CRISPR/Cas9, a type of genome editing technology, according to the FDA.
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“We were anticipating the approval of one cell-based therapy today but to have two approved is remarkable,” said Sickle Cell Foundation of Georgia, Inc. Executive Director Tabatha McGee. “We still are cautiously optimistic because of the costs and unknown long-term side effects. With the Casgevy therapy, we are looking at a $1.2 million procedure. Who will pay for it? Medicaid, private insurance, the struggling patient, or big pharma?
CRISPR/Cas9 can be directed to cut DNA in targeted areas, enabling the ability to accurately edit (remove, add, or replace) DNA where it was cut. The modified blood stem cells are transplanted back into the patient where they engraft (attach and multiply) within the bone marrow and increase the production of fetal hemoglobin (HbF), a type of hemoglobin that facilitates oxygen delivery. In patients with sickle cell disease, increased levels of HbF prevent the sickling of red blood cells, according to scientists.
Lyfgenia is a cell-based gene therapy. Lyfgenia uses a lentiviral vector (gene delivery vehicle) for genetic modification and is approved for the treatment of patients 12 years of age and older with sickle cell disease and a history of vaso-occlusive events. With Lyfgenia, the patient’s blood stem cells are genetically modified to produce HbAT87Q, a gene-therapy derived hemoglobin that functions similarly to hemoglobin A, which is the normal adult hemoglobin produced in persons not affected by sickle cell disease. Red blood cells containing HbAT87Q have a lower risk of sickling and occluding blood flow. These modified stem cells are then delivered to the patient, scientists say.
Both products are made from the patient’s own blood stem cells, which are modified, and are given back as a one-time, single-dose infusion as part of a hematopoietic (blood) stem cell transplant, according to an FDA news release. Although the cause of the disease has been known since 1949, treatments were slow to emerge. In 1998, the FDA approved the first drug to treat sickle cell anemia, the most common form of sickle cell disease. This drug, called hydroxyurea, is effective in some but not all patients.
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Media Contact:
Michael Thomas: 404-755-1641 ext. 237 or at mthomas@sicklecellga.org
Maria White Tillman: 404-755-1641 ext. 202 or at mwhitetillman@sicklecellga.org
Sickle Cell Foundation of Georgia, Inc. (SCFG) Announces the
43rd Sickle Cell 5K Road Race/Walk
Annual Fundraiser will Culminate with a FREE Outdoor Concert and Candlelight Vigil in downtown East Point. Race/Walk starts at 5PM
ATLANTA, GA [July 6, 2023] — Early bird registration for the 43rd Sickle Cell 5K Road Race/Walk is now open. Participants who register now through July 31st will receive a $5 discount and a guaranteed souvenir T-shirt.
The charity fundraiser takes place at 5PM Saturday, September 9, 2023, in beautiful downtown East Point on a 5K route starting at East Point City Hall, 2757 East Point Street, East Point, GA 30344.
“We are excited to have the Sickle Cell Race/Walk become an evening event with a new feature this year and that is, our after-race concert,” said SCFG Executive Director Tabatha McGee. “We want this event to be a true family affair so come out to enjoy the race, the concert and delicious food from the numerous food trucks that will be onsite.”
The after-race concert will feature soulful music and good times by Atlanta recording artist Joy Anderson and band in the city hall quadrant. Lawn chairs are welcomed. A candlelight vigil will also take place in memory of family and friends we have lost.
The Sickle Cell 5K Road Race/Walk is a popular, charity race recognized as one of Georgia’s longest, consecutively running road races. Since its inception, it has supported the Sickle Cell Foundation of Georgia’s Camp New Hope, a weeklong medically supervised camp for kids and teens living with sickle cell disease. The race/walk is an official AJC Peachtree Road Race Qualifying Event. SCFG is a statewide 501(c)(3) nonprofit advocating for and serving children and adults with sickle cell and other abnormal hemoglobin. SCFG offers affordable, mobile and in-person adult medical services, sickle cell testing, specialized care coordination, educational opportunities, and food assistance.
Today, African Americans and people of color are disproportionately impacted by Sickle Cell Disease (SCD) which unfortunately is characterized by pain episodes and severe organ damage that can lead to early death.
To register for the 2023 race/walk charity fundraiser, visit www.sicklecellrace.com. Enter discount code Earlybird for $5.00 off until July 31st.
MEDIA CONTACT:
Michael Thomas, SCFG Communications
Phone: 404.755.1641 ext 237-Office / 404.408.1898-Cell | Email: mthomas@sicklecellga.org