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Sickle Cell News and Information


Share Your Views About Gene Therapy
Calling all Sickle Cell Warriors and Caregivers!  Cayenne Wellness Center and UCLA Health are seeking 500+ responses for an important...
Oct 22, 20241 min read


Senator Warnock Shares Resources for Hurricane Helene Sufferers
From the office of Senator Raphael Warnock Dear Georgians, Â I pray that you and your loved ones are all safe in the aftermath of...
Oct 4, 20244 min read


Why Gene Therapy For Sickle Cell Is Slow To Catch On With Patients
Article originally published in Reuters LOS ANGELES, Sept 28 (Reuters) - Student Zoe Davis, 20, was just weeks into her junior year when...
Sep 30, 20247 min read


Pfizer Voluntarily Withdraws All Lots of Sickle Cell Disease Treatment OXBRYTA® (voxelotor) From Worldwide Markets
Article originally printed in businesswire Pfizer Inc. announced today that it is voluntarily withdrawing all lots of OXBRYTA®...
Sep 26, 20246 min read


The Inaugural HHS Sickle Cell Summit Releases Guide, Outlining Steps To Acquire Social Security Disability Benefits
If you have sickle cell disease, you may be eligible for disability benefits through Social Security’s Disability Insurance (SSDI) or...
Sep 24, 20241 min read


People Living with Sickle Cell Share How the Disease Affects Them
Juanita McClain Life expectancy for people with sickle cell in the U.S. has increased to about 50 years, but some people with the disease...
Sep 24, 20249 min read


Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action: Community Engagement and Patient Advocacy
The following is an excerpt from Chapter 8: Community Engagement and Patient Advocacy HISTORICAL PERSPECTIVE Individuals living with...
Sep 11, 202450 min read


Resolved to solving sickle cell disease
GRA-led initiative leverages, expands Georgia's strengths and assets Georgia’s Solve Sickle Cell Initiative (SSCI) aims to leverage the...
Sep 9, 20243 min read


GRA Eminent Scholar named to lead Georgia’s Solve Sickle Cell Initiative
An accomplished researcher in genetics and sickle cell disease is returning to Georgia to lead a science and medical collaborative that...
Sep 5, 20244 min read


Medicare Advantage Has Become Notorious for Prior Authorization—CMS and Lawmakers Are Taking Action
Pablo Martinez Monsivais/AP Images In the preceding months, her father’s falls had quickly gone from an occasional scare to a...
Sep 4, 202411 min read


A Surge in the Human Parvovirus
The Centers for Disease Control and Prevention is warning of yet another respiratory virus in the back-to-school season. The virus is...
Sep 4, 20243 min read


A pill to treat sickle cell disease? Compound that activates fetal gene raises new hope
A pill to treat sickle cell disease? Compound that activates fetal gene raises new hope Drug strategy, shown to produce hemoglobin in lab...
Jul 11, 20244 min read


Casgevy and Lyfgenia: Two Gene Therapies Approved for Sickle Cell Disease
Yale doctors discuss the implications of these treatments for those with the debilitating blood disorder. Until recently, the only...
Jun 25, 20247 min read


Infusion Centers or EDs for Sickle Cell Crises?
Infusion Centers or EDs for Sickle Cell Crises? — Adults with SCD treated in infusion centers had improved outcomes in three key measures...
Aug 28, 20234 min read


Nutrition in Sickle Cell Disease
Nutrition in Sickle Cell Disease: a call to action to improve the health and wellbeing outcomes of sickle cell patients! By Claudine...
Aug 28, 20237 min read


Nutrition for the Child with Sickle Cell Anemia
Contributors: Sarah Klemm, RDN, CD, LDN and Marisa Moore, MBA, RDN, LD Published: November 10, 2021 Reviewed: October 21, 2021 Sickle...
Aug 28, 20232 min read


From Africa to the U.S.: A Young Woman’s Search for Sickle Cell Disease Treatment
"I can't describe the pain," says Yinka. "I had it everywhere in my body—my chest, my back, my face, and even in my fingernails." Yinka...
Aug 28, 20233 min read


The Costs of Living with Sickle Cell Disease in the United States
Sickle cell disease is more than an illness—it's a financial strain, too Sickle cell disease is a group of inherited red blood cell...
Aug 28, 20232 min read
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